12 Comments

Yup, I'm childless and have lived with MS for 20 years. I routinely use a rollator to move around and switch to mobility scooter for any distances.

Pacing is essential, as is radical honesty with myself about what I can *actually* manage on any given day.

I enjoyed this post, thank you.

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love this! our resistance to expose our individual vulnerabilities and our large-scale care crisis are totally intertwined. everything above does a beautiful job of illustrating how and why.

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Thank you for reading, Elissa! I love your work!

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Thank you for unpaywalling this! I’m disabled living with my 3yo niece and this was very helpful!

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Wow, Lisa. A fantastic post. Rich in more ways than I can count. I loved your detailed understanding that your privilege matters to your coping strategies. And, mainly, I am so glad that you're coping! As for me, I'm privileged to call you a friend.

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Thank you so much for reading and commenting, Walter! Big hugs. :)

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Thank you so much for this post. As someone who’s struggled with (undiagnosed until recently) chronic health issues for a couple decades, I am also just learning how to truly pace myself and ask for the support I need from those around me. This was wonderful encouragement to keep working on it!!

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Giving lip service to pacing versus actually doing it are two such separate things, it turns out! Thank you so much for reading. :)

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Thank you for offering the discounted rate. I just purchased the annual membership but I am unable to add the buy one get one purchase. It still registers as $50. Any idea how I can fix this? Thanks a million.

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Thank you for letting me know, Sondra! I wonder if others are having this same problem. Let me check with Anya and I'll get back to you soon!

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I don't know why I'm surprised that Disney charges for the mobility scooter but I am. I guess it's because too many people might use the service if it were free, and not really need it, leaving none for the people like you who truly need it. It kind of sucks that the deterrent for that is a paywall, you know. I'm glad you got one though and I'm glad you were able to enjoy Disney in a way that worked for you!

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Oh, they charge for everything! At one point a couple of teenagers walked up to me and asked where I got it and I explained the whole system and then one of the kids was like, "Are they free?" and I had to tell him no, and he was like, "It's just that my hip is really hurting" and he limped away. :(

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